2nd Multiple Sclerosis Inclined Bed Therapy IBT Pilot Study Results

progress,Sunday 17-Oct-1999 14:34:29,62.6.112.147 writes,it started at
the left hip worked down the left leg and up to the right hip. Toe
nails are back to normal on the left foot and improving on the right.
There is a lot more movement in both legs but no strength in the ankles
at all yet. If it was not for the raised bed there would still be no
feeling at all as I was told in my spinal injury unit that after two
years there would be no more improvement which was right until I raised
my bed two years ago ,,
progress record,Monday 4-Oct-1999 22:56:12,203.59.24.251 writes,Hello
everyone! I've been doing the inclined bed since January 99.I was
diagnosed with Ms in 94 with slowly progressing type.I am confined to a
wheelchair now.Personally I think like most of us than I had it for
much longer before diagnoses. Getting to the point I think I'm
getting some results.First of all my time on a treadmill is longer &
I'm walking with a greater ease than before the stationery bike is
much easier to do as well.This two I'm using to keep my muscules
"alive".I think for people who can't walk without some help of a
stick crutches walking frame or a whelchair treadmill & stationery
bike is a great idea (from the experience point of view)it is also
greatidea with the inclined bed to restore some muscle control &
function because everything needs a bit of help. Otherwise I'm
feeling up & down somethimes feel like I can do anything already other
times I'm really weak & tired.My optic neurities also seems to be
nearly gone one day really bad the next. Overall I think I'm getting
better very slowly (two steps forward one step back-as longest finally
is not the opposite )& I LOVE sleeping this way. I have a small
daughter which I put her bed in an angle as well because she had this
allergic cough very very bad one.First few nights (like a good mother
would do)I was moving from the cupboard with all the syrups to her bed
considering giving her antihistamine or not -the cough was so bad)&
after two nights it just stoped & she hasn't cough since. Isn't
this encouraging? I hope for more good news soon.
,Marzena,mon...@iinet.net.au

Re: Multiple Sclerosis,Thursday 21-Oct-1999 16:05:56,209.30.166.151
writes,Oct 20 1999 Jean Marie
Andrew I have to say many thanks to you. Sleeping is so enjoyable
now. I have ms dx'd in 1983. I have been in a wheelchair since
1985. I started the inclined bed on May 10 1999. The reason I started
is that I was tired of getting up 2 3 4 times a night to use the
bathroom. The first night I slept right through not needing to use
the bathroom. That was an unbelievable event! These are some of the
changes that have occurred since using the inclined bed: 1.-Now I
get up maybe 1 time a night. 2.-I used to wake up during the night
with my joints aching-they don't ache anymore 3.-I sleep much
deeper now and if something wakes me up I can go right back to
sleep. 4.-I am not so stiff upon rising. My muscles were always so
tight it took awhile to be able to move comfortably. 5.-When I
first stand up from the side of my bed I feel a little burst of
energy upon rising that makes it easier for me to stand (this is
only in the last 2 months). 6.-I am starting to be able to roll over
without such tremendous effort. 7.-I have better control over my
bladder. 8.-The spasticity in my legs seems to be decreasing.
9.-My legs are becoming stronger. They don't give out on me as
quickly as they used to. 10.-My metabolism seems different I don't
crave food all the time.I have lost weight. All these positive
things make me glad that I waited to see results. I can't wait to
see what next month brings! Thank you again Andrew and God bless you
and your work. Jean Marie ,Jean Marie,Nesar...@bellatlantic.net

Inclined sleeping,Friday 22-Oct-1999 16:32:24,216.13.40.112 writes,My
mother is a sufferer of MS. She is now in an electric wheelchair
almost full time. She sleeps badly and gets up several times during
the night to urinate and has had several falls doing so and even
broken her leg and a finger. Please send me more information on this
"inclined sleeping" Her attitude is very poor as are her spirits
and she does not believe in non-standard medicine although not has been
done for her to date. She also has severe osteo-arthritis which causes
her a lot of pain.
Thanks!
Nora ,NORA,fagenn...@hotmail.com

Re: Inclined sleeping,Friday 29-Oct-1999 22:49:05,35.9.49.55
writes,Nora Your mom will love this. because getting up in the night
to urinate is in the past for me. I use to get up 2-5 times per night
and since sleeping inclined (the first night) I haven't gotten up
during the night. We just put large bricks under the head of the bed.
Raise it up 6 inches. Could use wood or blocks or bricks anything to
lift the head of the bed up 6 inches. NO more No less. After getting
use to the bed I love it and won't sleep flat anymore. My drop foot
has gotten a little better I use to use a cane and now I don't. I
feel more rested and energetic than I did a few months ago. Good Luck
to you give it a try. Connie ,,fairm...@pilot.msu.edu

Re: Inclined sleeping,Saturday 30-Oct-1999 22:07:02,205.188.197.26
writes,Nora
I empathize with your mom's MS problems. The inclined bed is hardly
"medicine" - conventional or not. However it could seriously
improve her life if she is willing to give it a try! Print out some of
the comments on the message board for her to read if she does not
access to a computer.
I can't believe anyone with this condition would rather give up and
try something that couldn't possible hurt them and might even give
them their old life back again! Raising the head of the bed up 6
inches is such a simple thing to do. It seems so ridiculously simple
that you couldn't imagine it could actually DO something so
significant FOR you - but it really does!
I hope she will give it a try - you won't need to be so concerned
about her at night because she won't need to be up so much!!
,Terri,tesa6...@aol.com
Repost of Message

Kids' Baths?,Wednesday 27-Oct-1999 14:39:36,206.214.102.65
writes,Normally when I wake up in the morning I would get out of bed
and experience MS symptoms like bad balance problems and weakness. I
would stagger and sometimes can barely able to stand up. Then last
Sunday morning I woke up with greatly improved balance and more energy.
I was puzzled on how that could happen. Then today I realized that last
Saturday night we were at my parents' house and my mom had given one
of the kids a bath. We came back home and put the kids to bed right
away. Normally the kids take baths in our master bathroom at nights.
Could the kids' baths create humidity in our bedroom? Is humidity
really not good for people with MS? I don't have a dehumidifer
because we live in a hot and dry area.
L.L. ,L.L.,

Re: Kids' Baths?,Tuesday 2-Nov-1999 16:06:22,210.8.232.4 writes,I
started using the angled bed whilst I was living in HK in March 1999.
The results were immediate with improved sight in my left eye better
walking far improved bending in the knee improved stamina etc.
I moved to Australia late April and the progress dissapeared. After
working with Andrew the only thing that was different was the
enviroment. In HK there was constant air conditioning due to the
humidity so I didn't really experience the effects of humidity. I
patiently waited until all my goods came from HK to Australia got out
the dehumidifier and got immediate benefits. I am not as good as in HK
but stamina knee bending have dramatically improved.
Suggest you consider stop exposing yourself to humid enviroments and
get a dehumidifier.
Take Care. John
,john giannopoulos,j...@enternet.com.au

Re: Kids' Baths?,Wednesday 3-Nov-1999 02:13:28,212.1.128.62
writes,Hello
Nice to here from you.
Your observation regarding the kids bath time is spot on! Internal
humidity is a major problem today with on-suite showers and baths it
can only mean more problems for circulation.
Circulation according to the new theory for fluid transport in plants
and animals requires efficient evaporation from the respiratory tract
eyes and the skin as it does with the leaves of trees and plants. If
the humidity is high then water loss reduces because the water cannot
leave the body nor can it leave the tree or plant and visibly remains
on the surface of the skin as sweat.
Living in a high humidity area is undoubtedly the cause of many medical
conditions as anyone who has moved to the coast or a river valley
area will realise. Respiratory problems lethargy aching joints and
muscles sweating arthritis and even neurological conditions are
usually aggravated by increased humidity.
Ironically the old seal free metal framed single glazed windows which
dripped with water and formed a pool on the windowsill was a good
tool for removing moisture from the air inside our homes. This type of
window provided us with an efficient dehumidifier that operated for
free. But now the age of double and triple glazing inserted into warm
plastic frames is upon us. While the sales people boast that those
horrible water soaked metal framed maintenance demanding windows are
a thing of the past they fail to tell us where the water has gone? If
the water is not on the windowsill in the morning it must be in the
air. This is in fact where the problem of high humidity in our
dwellings resides poorly ventilated and artificially warm our homes
become moisture traps if not from the clothes drying on the radiator
or the clothes frame then from the house plants and fish tanks which
ornate our rooms. This should be obvious when one continually waters
the plants and tops up the fish tank regularly. Another consideration
is a home where cooking hot showers and baths are a daily occurrence
particularly with one or two teenagers hogging the bathroom and eating
us out of house and home at every opportunity. Some homes even have
heated swimming pools or trickling water features. All of this water
cannot escape from a modern home that is sealed to perfection it
merely saturates the air. Furthermore the excreted moisture from our
bodies and the bodies of our pets serves to add to the problem. The
worst kind of home for health in my humble opinion is an upside down
house which allows all of the moisture from our daily activities to
flow down the stairs and into our sleeping quarters.
The point to all of this is that even if you are out in the middle of a
desert you could still be at risk from a high humidity problem
perhaps the desert area might be irrigated regularly in order to grow
crops. Common sense tells us that it is unlikely that we would build a
dwelling too far from a water source perhaps a river or an inland
water reserve. This too could significantly increase humidity
particularly at night as the air cools and falls to the lowest areas.
But what does this have to do with a sloping bed I hear you ask?
The theory is that we need to be able to evaporate water from our
bodies and to do this efficiently the air that surrounds us needs to
be dryer than the air we breath out otherwise we simply breath in as
much water as we breath out. The potted plant in your home also needs
to lose moisture in order to thrive and is in direct competition with
you and I as we struggle to evaporate water.
What could be done to improve this problem of progress?
The obvious ones should be to get rid of most of your houseplants and
sell the fish tank. Stop drying washing on the radiators and install a
powerful extractor fan in the kitchen and bathroom in order to get rid
of the massive amount of water that we emit from our daily activities
into the air.
Finally consider purchasing a dehumidifier. These are excellent value
for money and provide us with the means to substantially reduce the
humidity problems. They save you money on your heating bills by drying
the air which then becomes more effectively heated. They reduce the
damage to our clothes and homes caused by mould and fungus. A dryer
home does not support dust mites and if there is no mould or fungus it
must eliminate the spores from such organisms.
But what does this mean for me?
Increase the rate of evaporation and you increase the rate of
concentration in the liquid which the water evaporates from. Because
the residual liquid contains salts and sugars the resulting liquid
must be heavier as a result of the moisture loss.
The heavier liquid must flow down due to the influence of gravity and
this must therefore generate a return flow which becomes a circular
flow and return system or circulation. So simple yet so underestimated
and as yet overlooked. Ostracised by many and absolutely impossible to
discredit!
,Andrew,

Re: Inclined bed,Saturday 30-Oct-1999 21:44:23,205.188.197.47
writes,Billy The bed can be very inexpensive to create. I just used
a conventional frame and separated it from the head board. I used milk
crates but any stack of anything to raise it six inches higher than
the foot. As for sliding down yes..it's a problem. I added an old
headboard to create a footboard! It has worked wonders.
I hope that something can help you with your problem! I will be
praying for you and I hope this little change in your sleeping habits
can give you some relief!
Please e-mail me if you want to chat futher!!
,Terri,tesa6...@aol.com

Re: Inclined bed,Sunday 7-Nov-1999 13:07:46,195.8.81.191 writes,A
reply to Billy
Hello Billy
I read your message about the pain you are in. I dont know how long
you have suffered I had a lot of pain and raising my bed head really
helped in my case the pain stopped very fast but after a couple of
months I started getting nerve regeneration pains they have just about
gone now. Please hang on in there if you have a doctor that wants to
help ask him for REMEDEINE FORTE and if that wont do it ask for
cyclamorph 15. That will for certain I really do know what it is like
don't give in beat it m try not to get negative thoughts think of
all the good times you have had. Don't even think of suicide look at
the sorrow it will bring to all the loved ones you will leave behind.
This is not a lecture I have just about beaten it after two years on
Andrew's raised bed so so can you!! I wish you all the best. there
are a lot of people worse off than us
John ,John Cann,honico...@clara.net

Re: Inclined to sleep inclined,Saturday 30-Oct-1999
21:59:06,205.188.197.36 writes,Ellen
Sleeping on the inclined bed is really very simple and I can't
believe that everyone with MS isn't in their car headed for the
closed lumber yard or hardware store! All you need to do it to raise
the head of the bed up six inches higher than the foot. You can do
this with any means you find easiest. I use 2 milk crates. (I'm all
for free!) If you find sliding down is a problem just attach a
footboard (an old headboard works - something from a garage sale
perhaps?)
I noticed improvement in my MS symptoms the very first night!
Continued improvements happened over several months. I've had 6
months with NO symptoms lasting more than a day or two. All Andrew
asks is that we who use this e-mail him with progress reports.
Such as simple easy thing seems like such a waste when people won't
even bother trying it! It certainly can't hurt the MS and it is
recommended for several other ailments that are common for many people
- like heartburn or snoring.
I hope that you can begin right away and that you have positive
results. Feel free to e-mail me and let me know if it's helping you
but most of all e-mail Andrew Fletcher!!
,Terri,tesa6...@aol.com

Re: Inclined to sleep inclined,Monday 7-Feb-2000
19:20:03,205.188.193.184 writes,To incline my bed I came across an item
in the Miles Kimball catalog. They are meant to raise the entire bed to
increase storage space. I purchased 2 and only used them on the head on
the bed. I wish I knew what they were called. If you get the catalog
you will be able to find them. Hope this helps. ,Lori,Foon...@aol.com
Inclined bed,Wednesday 27-Oct-1999 15:45:22,152.163.207.208 writes,I
here about inclined beds helping with pain. I have unbearable pain so
bad I have comteplated suicide many times. I have been on strong
narcotics for about 5 years when the accident occured. Who makes these
beds and how do you go about buying one? Also can you just raise a
standard bed a few inches? If so looks like you'd slide down the
bed. ,Billy,Bsha...@AOL.COM

Inclined to sleep inclined,Wednesday 27-Oct-1999
21:17:37,209.240.200.72 writes,I have MS and have been reading all the
mssgs. about sleeping inclined. Just exactly how does one do this?
Do you have a special bed - like a hospital bed? Or do you put
something under the head of your bed to raise it..if so how much
higher than the foot should it be? Am I on the right track here or
are you speaking of something else? I have had MS for about 25 years
now and this is something that I've never heard of. Just how is
this supposed to help a person any and all details someone can give
me will be greatly appreciated. I'm already getting excited at the
possibilities!!
Thanks for your help. Ellen ,Ellen Dowdle,rdow...@webtv.net

Possitive Results,Tuesday 2-Nov-1999 15:08:12,209.30.183.42
writes,Positive results with M.S. related problems by sleeping with the
head end 15 cm elevated.
I am a 35 year old woman who has M.S. I have had M.S. since I was 14.
I cannot walk and therefore I use a wheelchair except from that I'm
functioning very well. Since may 99 I have been sleeping in a bed
that is 15 cm raised. The results are quiet positive. The first 2
nights I slept rather light and it was as if the pressure in my head
changed considerably. Within the first week this inconvenience
stopped. I slept better and did not have to go to the bathroom in the
night what I have had to for many years. Furthermore I have these
positive results: a freer breath my neck feels as if it is longer
more sensitivity in my legs warmer thighs more strength in my loin
greater muscle volume in my thighs almost no pain when I have my
period more spasms and moves in my legs but it does not hurt does not
sweat unconfortably at night my sense of touch all over the body is
getting better as time goes by I have more energy and am more
refreshed in my body. Recently I spent 14 days on Crete where I slept
in a normal bed. I had to go to the bathroom every night and felt less
refreshed after each night so it was good to get back home to my
raised bed. After 2-3 nights I did not go to the bathroom at night
again and quickly I got my energy back again and felt refreshed in the
morning. My energy level changes a bit but in general I have got more
energy and wellbeing since I started the raised bed therapy. So I
keep on going with hope and confidence even though there are periods
where I do not feel progress. I regurlarly see a iris analyzer whom I
have given the report on the gravity study she is very excited and
positive to the idea and believes there is something about it. Apart
from that I have worked with different forms of therapy healing
eating ecological vegetarian food and using homeopathic and nature
medicine these supplemental treatments have I used before the raised
bed with good results too and I still use them. If you want to know
more about that see: http:home12.inet.tele.dk/c_kolsen/

i feel good,Saturday 13-Nov-1999 17:26:56,212.252.28.162 writes,i m
sleeping inclined for nearly 15 days. and i feel better. my legs got a
bit stronger. i can walk a bit regular and long. my steps become a bit
orderly. i will sleep inclined forever i think.
see u soon with good news ,sedat,sdereqnetscape.net

newly found you,Thursday 4-Nov-1999 15:37:14,212.252.31.99 writes,i
found this message board and i m very pleased. seeing friends around
with same problem made me happy. since we may share our experiences and
thinks. And we ll inform each other from new developments on MS. thank
u all... and i must say that i started to sleep inclined bad... see u
,sedat,sd...@netscape.net