Tuesday 01-Aug-2000
I think this could be a big part of the answer to spinal cord damage as
well as the diseases which attack the mylin and nerves. I have found a
way to remove the symptoms of MS. I am using EFA's lowfat diet
supplements and the Histamine and Cream Formula as outlined at
www.insidetheweb.com/mbs.cgi/mb1086423
I am symptom free
except when I over do it. I think the Histamine formula helps the
nerve's to relay messages better. My supplements are helping to
repair current damage and get rid of the toxins. Thank you again Andrew
I know this will help to relive damage.
Marlene Wa.
Hi Marlene
Thank you for posting this.
I have been trying to gain support and interest from Christopher Reeve
since 1995. Many times I have tried to contact him and to-date he has
not responded.
Christopher Reeve's Agents are
Scott Henderson William Morris Agency 151 El Camino Drive Beverly
Hills CA90 212 USA Tel 001 310 274 7451 phoning from UK Fax 001 310
859 4462
********** Christopher Reeve Paralysis Foundation . 500 Morris Avenue
Springfield NJ 07081 (800)225-0292
***************
From: Maura Hofstadter <mhofs...@uci.edu> Dear Mr. Fletcher I
spoke with the Center Director and Board. The policy of the
Reeve-Irvine Research Center is that we fund Center researchers'
programs which are primary investigator (PI) -driven programs. Unless
a PI has the time interest and is convinced by the preliminary data
to pursue a collaboration we simply cannot undertake the research.
Unfortunately our budget does not allow us to support extramural
research at this time. As we discussed none of the PI in the Center
are currently working with humans and so we cannot pursue your project
at this time. The Board felt that this project is largely a clinical
issue and creating an appropriate animal model would be quite
difficult.
You may want to try collaborating with a corporation on your idea as
there is already an industry out there in "Rotorest" (See: Kinetic
Concepts Inc.) beds for SCI persons (i.e. beds that people are
strapped into that are movable without manipulation of the patient) to
help prevent pressure sores and improve circulation. These can be
tilted in many different directions including head-elevated. Given
that they have and make the equipment they may be interested in
working with you to demonstrate your theory.
I am sorry that the Center is not able to pursue research in this area
at this time but wish you the very best of luck with your research.
Sincerely Maura Hofstadter Ph.D. Director of Education and
Scientific Liaison Reeve-Irvine Research Center University of
California Irvine 2109 GNRF Irvine CA 92697-4292 (949)824-3993
(949)824-2625 fax
Reply
Dear Mrs Hofstadter
How do you feel about this decision?
When I spoke with you you seemed very interested if I misinterpreted
the way you received the information please forgive me.
I am aware of the multiple tilt beds and also aware of the confusion
this rotation of patients places on the chances of nerve regeneration.
In my letter to you I mentioned funding from the International Spinal
Research Trust who would undoubtedly meet the costs of employing more
staff. All we need is a two page letter of intent.
Would you afford me a little of your time and tell me how you feel
about this possibility (raised Bed) in helping people with spinal cord
injuries? How you interpreted the information I sent to you would be
of immense value to me and if you could share your views and any
doubts you may have I could at least try to understand why doors slam
in my face so frequently.
Please respond
Regards
Andrew Fletcher
Response Dear Mr. Fletcher As I indicated over the phone and in my
email it is up to the Board and the Director. Their policy is to
conduct research that is of specific interest to professors here at
the Center. Unfortunately at this time none of the investigators in
the Center are working with humans and so your project is really
outside what we are currently doing. Further all of the Center people I
spoke with felt that your project while interesting would be better
conducted in a hospital or rehabilitation facility where clinical
research is an every day occurrence. For us to undertake this type of
project would be difficult as we do not currently have access to
patient populations or facilities to conduct this type of controlled
study. As for an animal correlate the researchers all felt that it
would be difficult in the extreme to allow the animals to ambulate and
maintain a 5 degree elevation.
I'm afraid that until you have evidence from a well conducted
controlled study you will have difficulty. Your evidence is compelling
but anecdotal. For most scientists to take any idea seriously you
must have significant statistical data that you can present and
replicate. My best advise to you is to look for a hospital surgeon
or rehabilitation facility with the patient population to collaborate
with. Once you have data from a well controlled good study people
will readily accept your theory and bring it into mainstream therapy.
I am sorry that the Center cannot help you at this time but I do wish
you the best of luck in finding the right partner for your project.
Sincerely Maura Hofstadter Ph.D. Director of Education and
Scientific Liaison Reeve-Irvine Research Center University of
California Irvine 2109 GNRF Irvine CA 92697-4292 (949)824-3993
(949)824-2625 fax