Thisisalex' IBT Progress Tracking Journal

Name: ThisisAlex (this is also my name at thisisMS.com forum)
Male/Female: M
Age: 37
Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): 2000 RRMS
Lesion locations (most affected side, if known), number of lesions
left side of my brain is more affected

MS HISTORY PRIOR TO INCLINED THERAPY
gastrointestinal reflux (maybe related to voiding problems)
voiding problems
sexual problems
continous UTI (urinary tract infections) for 5 years
pins and needles in legs (below knees) and in right hand
dark areas under my eye
swollen left eye
dry, red eyes, especially after reading
very painful muscle at right scapula
my walking is hobbly but only when nervous
fatique
blurry vision
no dreaming
swollen left ankle
morning cramps in legs
night sweats
Night time bladder urgency
sex drive worsen and worsen, at the end non existing

MY HEALTH HISTORY AND CURRENT PROBLEMS :--

see above
on copaxone since 2008 (no relapses since then)
on IBT: 5 inches

GENERAL GEOGRAPHICAL LOCATION:
Budapest, Hungary
no chnages in my condition due to altitude
Altitude: cca. 300m

MS treatments and results:
Number of relapses in the first and second year before I.BT. intervention:
1 / year, very mild relapses

EDSS before I.BT. intervention (self-assessed or physician-assessed?):
EDSS 3,5 physician assessed
Number of relapses since starting I.B.T intervention:
0 (also on copaxone since then)

Impact on your MS symptoms in words (include date in brackets if there have been multiple updates):
EDSS as of this update (self-assessed or physician-assessed?)
EDSS 1 physician assessed

Have you had testing for CCSVI blockage yet: Y
Have you undergone a stenosis procedure N
If Applicable:
STENOSIS PROCEDURE HISTORY:
Date/location of testing/procedure:
Type of venographic study: MRV, and Doppler

Diagnosis: Stenoses and reflux have been found (will fill later)

Type of CCSVI Procedure: not yet


Progress reporting:


PROGRESS REPORTING:

1st 7 day notes I.T.

01/11/2009: first night on IBT: the most relaxing sleep for 5 years!




Update (2nd WEEK) I.T.
8/11/2009 : i remember my dreams. (or i dream again)

Update (3 WEEKS) I.T.
realized i dont have to go to the bathroom 3 times a night . maximum once


Monthly Update (4 WEEKS) I.T. Tracking date:_ MM/DD/YYYY

after 5 years no UTI! at all.
no night sweats anymore (before IBT my pillow was wet )

Monthly Update (8 WEEKS) I.T.
fatique is better
NO MORE dark areas under my eye
NO MORE swollen left eye
NO MORE dry, red eyes, especially after reading
NO MORE very painful muscle at right scapula

Monthly Update (12 WEEKS) I.T.
fatique is better
vision is better (can read descriptions on TV)
swollen of left ankle is much better but still exists

Monthly Update (4 MONTH) I.T.
same symptoms continued improving
Monthly Update (5 MONTH) I.T.
sex drive better

Monthly Update (6 MONTH) I.T.
same symptoms continued improving
Monthly Update (7 MONTH) I.T.
same symptoms continued improving
Monthly Update (8 MONTH) I.T.
same symptoms continued improving
Monthly Update (9 MONTH) I.T.
same symptoms continued improving


REVERTING BACK TO FLAT JOURNAL TEXT

SLEPT FLAT ON (07/15/2010) UNTIL (07/17/2010)
AND FOUND THESE DIFFERENCES:--
after 2 days UTI came back!
fatique was worse

Monthly Update (10 MONTH) I.T.
Sleeping again inclined, UTI disappeared after4 days

UPDATE
Stopped using copaxone in January 2011.
But still using IBT continously on 5 inches

No worsening of MS symptoms as of 08.30. 2011

I feel like a healthy man. Strong, stamina are OK.
UTI sometimes come back, but only for a limited time (few days) and very lightweight

No worsening

UTI's improved with people who have a spinal cord injury. Also many reports from people with ms. Having thought about this it may well be that a bladder siphon effect takes place when the body is on the incline that provides more complete evacuation of the bladder.
Thanks for providing an update

Andrew