Andrew,
We are very encouraged with the results so far. The pain is tolerable. Overall, I am sleeping much better at night.
We received the results of using the Pulse Oximeter and they seemed to be getting better but not enough to stop using the Bi-pap at this time. We will try again in a month or so.
We don't have any previous respirations and only limited pulse records. After checking our most recent BP records, the systolic pressure was mainly 50's and 60's. Now, since starting the study, the systolic
pressure is definitely averaging higher numbers. The diastolic pressure is not dropping to the extremes lows as it did prior to raising the bed.
Thanks for everything,
John McKinzie
Date: Tue, 10 Jun 2003 02:45:00 EDT
Subject: Re: Week #2
John
Sorry about the pain in your hips, did expect you to have some discomfort in the hips as a result of the dislocations you mentioned earlier. There is a chance that the ligaments in the hips might tighten up given time, though this is purely a guess, as never had anyone try this with your hip problem as far as I am aware. Urine sediment, was recorded as an increase initially with John Mason, followed by a decrease. We concluded that this could be the result of improved renal function, giving rise to an initial detox of the system prior to eventual normal urine production. Particularly relevant in people with water retention problems.
How do you feel about the results and discomfort so far John?
You are a lucky find, having the equipment to monitor your body functions is a great plus. But having an enquiring mind which you obviously have makes it a double plus. BP is looking very good, heart rate and respiration rate fairly regular also. Do you have any records of heart and respiration rate prior to this study? Check you bowel movements for firmer stools in the next few weeks, as this may be some of the stomach upset your are referring to.
Way to go John and family
Andrew
John McKinzie
Start of therapy: 5-26-03
HEIGHT: 6'4"
WEIGHT: 210
AGE: 45
MY MEDICAL CONDITIONS ARE LISTED AS FOLLOWS: C3-C4 Quadriplegic
(incomplete) since 05/22/77
**********************************************
Benchmark
**********************************************
MY CURRENT PROBLEMS ARE LISTED AS FOLLOWS: Fluctuating Blood Pressure
(high, 232/116 and low, 39/26) Muscle Spasms (legs, back, abdomen, arms)
Headaches (associated with spasms)
Ringing in ears
Dysreflexia
Both hips dislocated
Pain in the hips (pain extends across the pelvis), back, abdomen, right
side (between hips and ribs)
Poor Circulation in legs (absence of hair from mid to lower legs) No
Half Moons on nails
Pins and Needles feeling in hands and fingers Normal sensitivity stops
at 3 1/2" above the nipple Abnormal sensations: small area on right
forearm, above elbows (tricep area), splotchy area around the right
knee, chin on right leg. Sleeping with a Bi-pap
Frequent morning congestion
No Bowel or Bladder control
Fluctuating temperatures
**********************************************
MY PARTICULAR CIRCUMSTANCES ARE AS FOLLOWS: Scars: Neck (front and
back), Hips, Kidney areas, lower abdomen, buttocks, back of each thigh,
front top right thigh, right ankle, both heels amputated.
CASE STUDY: JOHN MCKINZIE after 27 years of paralysis and night time use of bipap ventilator
Week 2
6-3-03 Slept good. Some dizziness throughout the day. Urine seems to
have a stronger odor. Decided to start measuring input/output of fluids.
Legs are staying warmer. Having pain in hips (pain level 3.5). BP low in
afternoon and evening hours.
6-4-03 Restless night. Pain in hips (pain level 4-5). Morning hours pain
increased (pain level 7-8).
NOTE: Legs appear to have more muscle tone.
Overall had a good day.
6-5-03 Had a very good night. BP stable throughout the night and morning
hours. Hip pain minimal. BP still relatively stable throughout the rest
of the day.
6-6-03 Did not use Bi-pap overnight. Used a Pulse Oximeter to monitor
oxygen levels (will not know the results until the doctor calls with
them). Did not sleep well. BP still remains fairly stable throughout
morning hours. Hip pain increasing in early afternoon hours (pain level
8). Hip pain in evening hours (pain level 8.5+).
6-7-03 Did not sleep well. Tired throughout the day but felt good.
Minimal pain today. No other changes.
6-8-03 Had a good night, slept well. Minimal pain. Some dizziness in
morning hours. Some dizziness along with stomach upset this afternoon
and evening hours.
6-9-03 Had another good night. Still having stomach upset this morning.
Hip pain increasing. Early afternoon pain level 8. Some light-headedness.
Evening pain level 6. Still do not seem to have any swelling.
NOTE: Sediment in urine is usually at a high level but noticed decrease
in sediment today.
week 3-4
6-10-03 Slept well. Blood pressure fairly stable all day. Pain level
increased as day progressed (6-8). Continued decrease in urine sediment.
Low grade fever in the afternoon and evening hours.
6-11 Slept well again. Temp back to normal this morning. Some stomach
upset during afternoon hours. Hip pain in evening (pain level: 7.5).
6-12 Slept fairly well but woke up early (4:00 am). Some dizziness in
afternoon. Pain level about 6 in late afternoon. Evening hours pain
level increased to 8.
Low grade temp and elevated pulse.
6-13 Some restlessness throughout the night. Dizziness and low BP in
late morning hours. Some nausea in afternoon and evening hours. Pain
level: 4-5.
6-14 Did not sleep well. BP low throughout night. Had a few waves of
nausea today. Pain level: same as yesterday.
6-15 Slept better. Hip pain increased in evening hours (pain level:
7-8). Low grade temp in evening hours.
6-16 Miserable night. Did not sleep well. BP low. Experienced nausea
throughout the night. Hip pain (6-7) in morning hours. Still having a
lot of stomach upset.
6-17 Slept fairly well. Nausea has subsided. Otherwise no changes.
However, pain level increased in evening hours.
6-18 Had a very good night. Slept well! Hip pain level 7-8. Afternoon
and evening pain level increased to 8.5+. Low grade temp. Some nausea.
6-19 Slept fairly well. Minimal pain throughout the day. Pain level
increased in evening hours, otherwise no changes.
6-20 Slept good. Minimal pain. No other changes.
6-21 Did not sleep as well. Woke up often. Minimal pain today. No other
changes.
6-22 Slept well but not long. Minimal pain most of the day. Pain level
increased slightly by evening. No other changes.
6-23 Had a great night. Felt good most of he day. No other changes.
Note: On average, since starting the study, I have had better nights.
Week 7 & 8
7-8-03 Had a very restless night. Minimal pain today.
7-9 Slept great. Hip pain level: 7-8.
7-10 Slept good. Abdominal discomfort in afternoon and evening hours.
Hip pain level: 8.
7-11 Slept good until about 3 am. Hip pain increasing in afternoon
hours. Pain level: 8+.
7-12 Slept good. Hip pain level: 8+ throughout the day.
7-13 Restless night. Fairly good day. Hip pain increased in evening
hours. Pain level: 8.
7-14 Slept great. Hip pain reaching level: 8+.
7-15 Had a restful night. Hip pain still 8+.
7-16 Slept good. Pain level remained high throughout the day. NOTE: some
splotchy red spots on right leg.
7-17 Had a painful, restless night. Pain level: 8 Pain continued
throughout the day.
7-18 Slept good. Pain level down to about 5 this morning. Hip pain
increased in afternoon and evening hours. Pain level: 8+.
7-19 Did not sleep well. Hip pain seems to be more continuous.
7-20 Slept fairly well. Hip pain eased up today. Pain level: 5-6.
7-21 Slept good. Pain increased throughout the day reaching 8+.
Subj: Week 9 & 10
Date: 05/08/03 00:13:19 GMT Daylight Time
Week 9 & 10
7-22-03 Slept good. Pain level: 7.
7-23 Slept good. Pain level increased toward evening (pain level: 8).
Low grade temp in the evening hours.
7-24 Had restless night. Some dizziness in morning hours. Pain level
still elevated. Increased sensitivity in both biceps in approximately a
3" to 4" area.
7-25 Slept fair. Pain level dropped to about a 4 in morning hours. Hip
pain increased in afternoon and evening hours (pain level: 8+).
7-26 Slept great. Pain level has remained high (8+). NOTE: Examined
bicep areas with ice and felt cold (First time since the accident in
1977). There was no response to heat.
7-27 Slept fair. Pain still elevated today. NOTE: Did another test on
biceps using dull and sharp, could tell the difference.
7-28 Sleep was fair. Pain level reached 9 in the afternoon hours. Had a
low grade fever in afternoon and evening hours.
7-29 Slept good. Felt cold all day. Pain level: 5. No other changes.
7-30 Slept great. Still felt cold throughout the day. Pain level 7 in
evening hours.
7-31 Slept fair. Felt warmer today. Pain level: 6.
8-1 Slept good. Felt cool again. More muscle spasms than usual today.
Pain level: 7-8.
8-2 Slept good. Still feeling cold. Pain level remains 7-8.
8-3 Slept good. Felt warmer today. pain level dropped in morning hours
but returned to an 8 in the evening.
8-4 Slept good. Experienced some dizziness in morning hours. Pain level
between 8-9.
Vital signs are staying relatively the same as previously recorded. Do
you want us to continue sending them?
Week 11 & 12
8-5-03 Slept good. Some swelling in left foot. Hip pain level: 8+.
8-6 Slept great. Felt cold in morning hours. Pain level reached 8+
today. Low grade temp in afternoon and evening hours. NOTE: Swelling is
down.
8-7 Slept great. Hip pain level 8 in evening hours. Low grade temp.
NOTE: Surface sensitivity in right bicep area is now connected to
shoulder area. It is no longer a 3-4 inch patch. The connecting area is
not as sensitive as the the shoulder or bicep but has a numb tingly
feeling.
8-8 Slept fair. Pain level high this morning (pain level: 9). Continued
to be high throughout the day. Muscles in legs are very spastic today.
Running a low grade temp.
8-9 Slept good. Pain level 4 this morning. Pain level increased toward
evening to 7+. Low grade temp in evening. NOTE: Having some trouble with
the skin festering up behind both ears.
8-10 Did not sleep well. Feeling light headed this morning. Pain level:
7-8. Increase in spasms today. Not feeling well.
8-11 Restless night. Pain level remains elevated.
8-12 Slept good. Pain level averaged 8 throughout the day. Skin behind
ears still infected but looking somewhat better. Low grade temp.
8-13 Slept good. Pain level minimal throughout the day though it
increased in evening hours.
8-14 Slept fair. Had a headache all day. Pain level: 7-8. Increased
spasm activity in evening hours. Low grade temp. NOTE: Can now feel
pressure in a small area in the middle of the back (this is a new
feeling).
8-15 Slept good. Felt light headed throughout the day. Low grade temp in
the evening hours.
8-16 Slept fair. NOTE: Can now feel pressure all the way to the nipple
line. Hip pain level: 7-8.
8-17 Slept fair. Pain level increased to 8+ by evening. Increase in
muscle spasms in evening hours.
8-18 Slept good. Pain level increased in evening hours. BP running low
in evening hours. Some dizziness.
NOTE: Over the last 2 weeks noticed an increased in body hair (thighs,
arms, groin and torso areas).
BP daily high and lows - Pulse & Respiration daily range
232/116 39/26 Benchmark for BP
6-3 128/76 65/37 70-92 16-20
6-4 140/96 70/43 62-76 14-20
6-5 141/90 70/41 66-92 14-24
6-6 134/90 75/53 63-88 16-22
6-7 145/81 80/40 60-95 16-20
6-8 156/104 68/40 74-95 16-22
6-9 112/80 68/47 60-72 16-20
6-10 149/82 89/54 60-95 16-24
6-11 144/95 64/44 64-87 16-20
6-12 147/98 76/48 60-104 16-24
6-13 133/82 67/38 73-98 16-22
6-14 109/77 62/45 62-78 14-22
6-15 146/95 68/39 70-100 16-24
6-16 108/80 56/37 62-88 14-20
6-17 128/88 83/53 59-88 16-20
6-18 136/85 108/78 60-103 12-22
6-19 105/72 60/38 63-75 16-20
6-20 143/89 87/52 60-100 12-24
6-21 123/80 73/45 68-82 16-20
6-22 128/93 81/57 60-99 16-24
6-23 136/86 76/43 64-96 16-20
6-24 128/60 77/52 64-98 16-20
6-25 108/76 82/40 67-104 18-22
6-26 140/84 83/45 79-98 18-22
6-27 112/73 70/45 70-77 16-20
6-28 141/88 84/41 60-100 16-20
6-29 143/85 80/49 71-95 16-22
6-30 112/79 77/44 62-72 16-18
7-1 140/95 79/48 64-94 14-22
7-2 136/80 76/47 70-91 14-22
7-3 112/74 67/42 66-76 16-22
7-4 116/92 89/57 56-94 14-20
7-5 116/85 68/48 71/92 16-20
7-6 143/100 88/38 71-95 16-20
7-7 136/83 56/36 64-92 16-20
7-8 130/78 62/40 60-74 14-20
7-9 116/81 84/52 63-88 16-20
7-10 146/79 67/39 68-103 16-20
7-11 132/90 61/39 62-79 14-22
7-12 136/89 68/39 56-88 16-20
7-13 112/71 76/46 68-85 16-22
7-14 139/86 76/49 60-91 14-20
7-15 131/85 68/40 79-91 16-20
7-16 114/72 64/46 63-76 16-20
7-17 129/80 77/40 50-93 16-20
7-18 131/89 60/46 78-93 14-20
7-19 140/93 75/48 67-85 16-20
7-20 128/71 81/56 60-93 16-20
7-21 126/82 69/45 59-90 14-20
Urine Input/Output
6-5 2610/2525 CCs
6-6 2220/3000
6-7 2520/1700
6-8 2820/2800
6-9 1680/2200
6-10 2640/1900
6-11 2730/3700
6-12 2760/1200
6-13 3120/3975
6-14 2700/1400
6-15 2700/1200
6-16 3240/3500
6-17 2640/900
6-18 2670/1975
6-19 2700/3600
6-20 2545/2025
6-21 1860/2600
6-22 1965/1650
6-23 2640/3000
6-24 ...not available
6-25 2220/1650
6-26 1860/2600
6-27 2580/2200
6-28 1830/1200
6-29 2160/3175
6-30 2160/2650
7-1 1860/1600
7-2 2580/4500
7-3 2220/1900
7-4 2220/1575
7-5 1860/2100
7-6 2220/2800
7-7 2400/2300
Blood pressure readings
BPs daily highs and lows - Pulse/res. daily range
8-5 126/92 110/86 60-84 14-20
8-6 138/68 72/46 68-96 18-22
8-7 116/80 68/46 74-82 18-20
8-8 124/72 70/58 62-86 18-20
8-9 128/74 72/52 72-98 18-22
8-10 126/90 68/48 60-74 18-20
8-11 126/94 50/36 72/86 14-18
8-12 120/74 64/42 78/96 18-20
8-13 118/96 80/58 64/78 18-20
8-14 134/92 90/50 70/100 14-22
8-15 118/80 64/46 64/88 16-20
8-16 120/78 92/55 63/92 16-18
8-17 122/88 98/64 66/89 18-22
8-18 134/89 44/33 84/104 18-20
Week 13 & 14
Case study: John McKinzie
8-19-03 Slept good. BP still on the low side this morning.
8-20 Had a restless night. Pain level between 7-8 throughout the day.
Felt cold in the morning and afternoon hours. Low grade temp in the
evening.
8-21 Slept fair. Light headed most of the day. Pain level 8.
8-22 Restless night. Pain level still elevated today, reaching 8+. NOTE:
Still having trouble with skin behind ears. Also, having a lot of skin
breaking out.
8-23 Slept fair. Pain level high today.
8-24 Slept fair. Pain level remains high.
8-25 Slept good. Pain level down in morning hours. Pain level: 2. Pain
increased to between 7-8 in evening hours.
8-26 Slept good. Pain increased as the day went on.
8-27 Slept good. Went to the hospital due to skin problems. NOTE: Doctor
was very intrigued by the changes he saw. He seems to think that the
skin breaking out is due to a chemical change occurring.
8-28 Slept good. Pain level averaged an 8 today.
8-29 Slept good. Experimented with blowing up a balloon and was able to
blow it up to the size of a grapefruit. Pain level: 7-8. Low grade temp.
8-30 Had a very restless night. NOTE: Bed accidentally slid off of the
incline today. Will be back on the incline as soon as possible.
8-31 Did not sleep well at all. NOTE: Was able to get back on the
incline today. Pain level: 7-8.
9-1 Slept fair. No other changes.
BP's daily highs and lows - pulse/res. daily range
8-19 105/74 60/40 61-76 16-18
8-20 139/94 103/63 63-103 16-20
8-21 127/80 73/40 46-93 20-22
8-22 128/98 84/55 68-80 18-20
8-23 133/81 71/45 60-100 16-22
8-24 110/60 72/45 65-94 20-22
8-25 118/82 82/58 69-76 18-20
8-26 128/87 97/72 68-92 14-22
8-27 117/82 104/60 70-95 16-18
8-28 127/81 86/58 69-81 16-20
8-29 123/80 66/44 72-93 14-18
8-30 111/68 76/52 72-82 16-20
8-31 115/90 82/36 68-86 18-20
9-01 116/82 82/50 77-97 18-20