Diagnosed in 2002 with RRMS, I began Copaxone immediately.
I learned about IBT on thisisms.org in 2010. At that time, I was considering seeking the liberation procedure, but decided to try IBT first. I stopped the Copaxone the day I lifted the head of my bed in 2010.
Since then, I have had zero relapses, and all my symptoms are gone. (Even the l'Hermitte's Sign.) No meds, no surgeries, no special diet... just IBT.
I don't tell my story to anyone who doesn't ask about it, and I have no interest in telling anyone else what to do for his/her own health. I can only share that this has worked for me, for six years, at whatever stage of RRMS I was/am in. I will never lower the head of my bed again.
Haven't been here for a long while, but never forgot about this site or its importance!
It's been more than two years of IBT for me with no other forms of 'treatment'. I have had zero relapses and am much steadier on my feet, have normal heat tolerance, and no longer worry about becoming 'overheated' when exercising.
In fact, I have figured out that as long as I am doing some form of exercise that is fairly vertical, I'm ok. This has been heartbreaking for me as a wannabe masters swimmer, who swam in high school and college, but if I want to feel that "OMG, my head is going to explode from the pressure of too much blood flow to it with no escape" feeling, all I have to do is swim four or five laps without stopping. It's amazing that no other form of exercise gives me that terrifying sensation. I attribute it to being flat while swimming. I tried once again about four months ago, and never again. I'm terrified of having a stroke. I wonder if anyone else has ever noticed this?
So walking and biking, it is.
I'm sorry I never did all the measurements and regular check-ins that would have been really helpful here, but I just never made the time. I am thrilled with my results from IBT! I wish I could figure out how to get the letters MS out of my medical records as I now know that vascular issues have been my problem and my immune system works fine. I had seriously considered having the angioplasty surgery, but no longer feel a rush to do so. It would be great to sleep flat again, but having surgery in order to be able to do so? I think not.
I am very grateful I learned of this therapy. I feel it has really worked for me and prevented further problems of progression. When I speak to others who have MS, I am always surprised at how resistant some can be to the idea of this simple, non-invasive therapy... Why NOT try it?
Anyway, husband's complaints not withstanding, I loved my raised bed!