× Inclined Therapy (I.B.T.) For people with multiple sclerosis (MS) Chronic Cerebrospinal Venous Insufficiency (CCSVI) and Limes Disease

OK77 I.B.T.

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2 years 2 months ago #7 by Andrew
Andrew created the topic: OK77 I.B.T.
Name: Ozi
Gender: Male
Age: 32
Date(s) & type of neurological diagnosis Sept 1997 RRMS
Lesion locations (most affected side, if known), number of lesions : I have no idea as it's been years since i last had an MRI Scan.

MS HISTORY AND BENCHMARK PRIOR TO INCLINED THERAPY

List all of your ailments. "Try to list every ache, pain, loss of sensation, loss of function or discomfort which troubles you and at what time of day it becomes worse. Expand wherever possible.

Optic neuritis (complete blurry vision for a month) weakness in both limbs, mainly right leg, balance issues, bladder problems, sensory loss, slurring speech, cognitive problems, memory, poor circulation, cold feet and hands.

MY HEALTH HISTORY AND CURRENT PROBLEMS :--
Now walk with 2 walking sticks due to balance loss and FES (Functional Electrical Stimulation) for both feet as they both drag when i am fatigued and have occasional tremors in both ankles.

lethargy, spasm, tremor, vision, feeling cold in bed, cold feet or hands, dreaming, morning paralysis, Irritability, ability to maintain body temperature, poor circulation, lethargy, depression, loss of movement in limbs, problems with balance. sensory loss, pins and needles, night sweats, bladder control, Urine infections, spasm, memory loss, backache, mouth ulcers, down below male problems.

GENERAL GEOGRAPHICAL LOCATION:
Born and bred in North London (very close to central London), emigrated to Cyprus (coastal area) aged 12 with family, returned alone to London aged 17 and have been back ever since.

Loss of balance has been affecting me for last 3 years and i now walk with 2 walking sticks and FES in both feet.

Extreme heat of cold both effect me. Too hot brings on fatigue very quickly whilst extreme cold stiffens my movement. desk based job woking in the IT Infrastructure department of a company based next to the Thames. Office is air conditioned and at a comfortable temperature.

MS treatments and results: Copaxone, LDN (3mg) and pure GABA. Copaxone to reduce relapses - relapse free for 2 years, LDN for improved energy levels, and GABA to reduce muscle stiffness. Walking sticks to aid balance when walking and foldable wheelchair when i know more than 30 minutes of walking is required.

Number of relapses in the first and second year before I.T. intervention: Can't remember

EDSS before I.T. intervention (self-assessed or physician-assessed?): Not sure.

To review EDSS rating, 6
FSS before I.T. intervention: 4.7
MSIS before I.T. intervention:
To calculate MSIS rating , 59
Impact on your MS symptoms in words : Loss of balance (last 3 years) troubled by appearance by using sticks but got over it.
EDSS as of this update (self-assessed or physician-assessed?) 6
FSS as of this update: 4.7
MSIS as of this update: 59

Have you had testing for CCSVI blockage yet: N
Have you undergone a stenosis procedure N
If Applicable:
STENOSIS PROCEDURE HISTORY:
Date/location of testing/procedure:
Type of venographic study: (MRV, Doppler)
Diagnosis:
Type of procedures:
Procedures/drug related symptoms:
[Repeat this section if there have been more than one procedure]
Number of relapses since first CCSVI intervention:

Progress reporting:

At some point, ‘preferably after Four months’, during the study you may wish to revert back to horizontal rest in order to determine the differences.

Please record any comparisons that are observed.
REVERTING BACK TO FLAT JOURNAL TEXT

SLEPT FLAT ON (DD/MM/YYYY) UNTIL (DD/MM/YYYY) AND FOUND THE FOLLWING DIFFERENCES:--
(Repeat Entry each time you revert back to flat)

*********************************************************************************
IMPORTANT: WHEN UPDATING PLEASE POST ONLY THE RELEVANT INFORMATION.
*********************************************************************************
PROGRESS REPORTING:

REMEMBER TO SAVE THIS FORM ON YOUR HARD DRIVE AS YOU EDIT IT EACH TIME AS THIS WILL BECOME YOUR OWN DIARY AND AN EXACT COPY OF THE INFORMATION YOU HAVE

REPORTED: This way if the data is lost at either end, one of us will have a copy. "Computers and web forums do crash".

1st 7 day notes I.T. Tracking date:_ 09/Feb/2010
Slept like a baby with warm hands and feet! Never had a need to get up to visit bathroom.

Update (2nd WEEK) I.T. Tracking date:_ 16/Feb/2010

Noticed improvement in left eye vision whilst shaving, also improvement in male down below function! :-)


Update (Following 2 WEEKS) I.T. Tracking date:_ 23/Feb/2010

Legs feel stiff when standing up almost as if the ligaments behind my knees are 'stronger/tighter). Stretching helps this.

Monthly Update (14 WEEKS) I.T. Tracking date:_ 09/05/2010

still the same as above but have noticed slight 'weakening' in legs and a burning sensation on sole of right foot when lying in bed, although fine when i am upright. Have also noticed a very small improvement in balance.

Monthly Update I.T. Tracking date:_ 26/05/2010

My heat tolerance seems to have improved. i was able to lie in the sun all weekend!

Monthly Update I.T. Tracking date:_ 08/06/2010

Off to Poland in July to be liberated after over 100 days of IBT! Last weekend i stayed at a hotel and slept flat for 2 nights. As a result i had lower back pain and bad memory. Now i'm back to as before the weekend.

Continue reporting using the same format, preferably once every month so that we can compare progress with other people sleeping Inclined.

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2 years 2 months ago #50 by Andrew
Andrew replied the topic: OK77 I.B.T.
Thanks Ozi This is a very helpful and hopefully will encourage more people using IBT to begin a tracking journal

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2 years 2 months ago #51 by Andrew
Andrew replied the topic: OK77 I.B.T.
Monthly Update (14 WEEKS) I.T. Tracking date:_ 09/05/2010

still the same as above but have noticed slight 'weakening' in legs and a burning sensation on sole of right foot when lying in bed, although fine when i am upright. Have also noticed a very small improvement in balance.

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2 years 2 months ago #52 by Andrew
Andrew replied the topic: OK77 I.B.T.
Hi Ozi added your last update to your original post :) Thanks for updating

Andrew

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2 years 2 months ago #53 by Andrew
Andrew replied the topic: OK77 I.B.T.
Hey Andrew,

I was in Poland 2 weeks ago and was treated for CCSVI as i had blockages in both Jugular veins.

Ozi

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